Thursday, 26 April 2012

Lord Jack Ashley – 52 years in Parliament and Disabled People

Tribute to Lord Jack Ashley by Gareth Millward

The sad passing of Lord Ashley of Stoke on 20 April 2012 shows that we have moved into a new era of disability politics. In the last 12 months, not only have we lost Lord Ashley, the most prominent disabled politician of his time, but also Vic Finkelstein, arguably the most influential disabled academic and Steve Bradshaw, the founder of the Spinal Injuries Association. They shaped the landscape of disability politics in the 60s, 70s and 80s. It is impossible to write the history of it without these men, and now seems like a good opportunity to revisit this period.[1]

Jack Ashley entered Parliament in 1966. His time in Westminster is almost exactly concurrent with what most would term the “disability movement” in the United Kingdom. In 1965 the Disablement Income Group had been founded which was the first organisation created by disabled people to lobby government for changes in policy towards them. When Jack Ashley became fully deaf after an operation to improve the hearing, his first contribution to the Commons was to introduce a Bill for a commission to be set up to monitor benefits for disabled people.

In the 1970s he worked tirelessly with the editor of the Sunday Times, Harold Evans, to bring the case of thalidomide-affected children into the public eye. Complex (and, frankly, anti-democratic) rules governed what could be printed and discussed about the case.

A number of children were born with deformities after their mothers had taken the drug thalidomide. Distillers, the company that marketed the drug in the UK, hid behind their lawyers, forbidding any family from speaking to the press about the case. Jack Ashley introduced a motion in Parliament to discuss the issue, and by using “Parliamentary privilege” was able to speak freely without being found in contempt of court.

This was no easy task: Parliamentary rules forbade the discussion of cases sub judice, or currently in court. He had to skilfully negotiate with the Speaker about how he could word his motion without mentioning the case directly but still discussing the needs of the children and their families and drawing attention to a gross miscarriage of justice.

He continued to campaign for those injured by private companies and the state who could not fight back themselves – not as a result of any impairments, but simply because they lacked the legal and financial clout to battle rich, vested interests. Later causes he would champion included those brain damaged by the whooping cough vaccine, old people disabled by the drug Opren and those receiving inadequate care from the state after serving in the armed forces.

My contact with Jack Ashley was as an historian and sadly was incredibly brief. When I started my PhD on the history of disability policy, I knew that he was one of the first people I needed to write to. Despite his failing health and the death of his devoted wife Pauline, he took the time to respond to my questions and offer as much help as he could. Of all the other people I have interviewed and corresponded with since, all acknowledge his immense contribution.

The history of Disability Rights UK is inextricably linked with Jack Ashley’s career. When Jack Ashley created the All-Party Parliamentary Disability Group in 1968, the Central Council for the Disabled was asked to perform the secretarial work. The CCD merged with the British Council for the Rehabilitation of the Disabled in 1977 to create the British (later Royal) Association for Disability and Rehabilitation. RADAR is, of course, now DRUK. DRUK’s archives, which I am most grateful to have been given permission to study, show in the old minute books discussions between Jack Ashley, the CCD and Conservative politician John Astor, the first co-chair of the group.

The Disability Alliance, another group which merged into DRUK, was also important to this whole story. DA’s founder, Professor Peter Townsend, was a prominent academic and sociologist who had campaigned primarily for people in poverty: including disabled people. He had gone to university with Jack Ashley, and, as Jack Ashley notes in his autobiography, Townsend was one of the many people who convinced him that he was much more use to disabled people as a deaf MP than he would be campaigning on the sidelines. DA’s archives, now part of the Peter Townsend Collection at the University of Essex, also show that Jack Ashley was an active part of the campaign for disabled people, often speaking at events and corresponding with ministers on behalf of the major disability organisations.

Some have said that there aren’t any politicians like Jack Ashley anymore. This is probably true. Like the other champion for disabled people in Westminster (the world’s first minister for disabled People, Alf Morris), Jack Ashley grew up in relative poverty in poor-quality housing in the industrial north of England. Both men rose through the unions (Jack Ashley in the chemical works in Widnes; Morris through the Co-operative movement in Manchester) and both gained scholarships to Ruskin College Oxford in their twenties. Despite their Oxbridge degrees (Morris in Oxford, Jack Ashley in Cambridge), neither could be considered aloof or out-of-touch with the common citizen, a criticism often launched at the front benches of both major parties today. Their backgrounds and educations meant that they saw the whole range of British society – and they were determined to change it for the better.

I’m often sceptical about “Great Man” history, or the idea that key people change history simply on the force of their ability and personality. Certainly, Jack Ashley and others could not have achieved what they did without the backing of voluntary organisations, the general will of the people to do more for disabled people, and the political climate of the late twentieth century. But it is clear that Jack Ashley was an incredibly able campaigner who channelled his efforts to campaign for what he felt was right and just.

What we can learn from Jack Ashley’s career is that politics and politicians can change things. Since the All-Party group was founded, we have seen numerous improvements in education, social security, independent living, transport, civil rights and equality.

And yet.

The pace of that change has been slow. We now have the ability to look back over the events in a 52-year Parliamentary career and maybe say, “yes, things are better than they were”. This is no consolation to the millions of disabled people who cannot wait years for the services and support that they need. This is particularly true in a political climate where the lessons of the 1960s appear to have been forgotten and things appear – though we will only know with hindsight – to be regressing to an earlier stage of development.

The Disablement Income Group wrote in the early 1970s that disabled people were always promised “jam tomorrow, but never today”. It seems that some things have changed little in 40 years. Jack Ashley and his contemporaries achieved much: but the lesson to be learned is that there is always more that can be done.

Gareth Millward is a historian coming to the end of his PhD at the London School of Hygiene and Tropical Medicine. “I am writing my thesis on UK disability policy between 1965 and 1995 and what this says about governments’ conceptions of disability. I am grateful for the support of Disability Rights UK who have granted me access to their archive of material from RADAR and the University of Essex for allowing me to study the archives of the Disability Alliance.”


[1] All the major newspapers wrote glowing obituaries about Lord Ashley, so there is no need to go over his biographic details again here. For more information about his background, he wrote two autobiographies, one entitled Journey into Silence published in 1973 and the other Acts of Defiance after his retirement as an MP, published in 1994.

Friday, 20 April 2012

The Minister for Disabled People gets it right!

The Minister for Disabled People gets it right!  This might not be a headline you would expect, but on this occasion Southampton Centre for Independent Living (SCIL) welcomes Maria Miller’s decision to close most of Remploy’s factories, including the one in Southampton.


So, why is SCIL supportive of the Minister’s Decision? Remploy, along with many other institutions, were set up to provide employment or care to wounded soldiers returning from wars. Over the years, these institutions evolved to the point where all that most Disabled People had to look forward to was to be passed from one institution to another, steadily becoming more excluded from society; becoming more and more dependent on a vast army of non-disabled staff and managers, all doing very well from the disempowerment that their work caused. In the 1960’s and 1970’s Disabled People started to challenge these institutions, Disabled People like Paul Hunt (Who helped start the CIL Movement in the UK) stated that “Institutions were not solutions”. They said that Disabled People should live and work in the community; just like everyone else. SCIL was born from these basic principles.

Moving forward to 2012, Disabled People have shown that living and working in the community enables us to have quality lives, and contribute to society just as much as non-disabled people. Remploy, and many similar institutions, however, have continued to provide disempowering, non-progressive, segregated employment to Disabled People. In the 21st Century, these places are now seen by many (including SCIL) as obsolete dinosaurs in the modern world where Disabled People demand to be employed in mainstream businesses.

The facts speak for themselves, Remploy’s factories employ just 2,000 Disabled People, almost all lose money and the ‘business’ as a whole lost £68 million last year (funded by the tax payer). A report was recently written by Liz Sayce, Chief Executive of Disability Rights UK (which includes the National CIL) called “Disability employment support fit for the future”. This report called on the Government to do more to improve the Access to Work (ATW) scheme which supports Disabled People to work in the mainstream; and to end segregated employment, including Remploy. The report highlighted that Remploy cost vast sums of money and did very little to provide ‘real’ employment opportunities for Disabled People. In fact, every Remploy place currently costs £25,000 a year, compared with £2,700 per person under the ATW scheme. It is calculated that for every £1 invested into ATW, £1.44 was returned to the economy.

Download this report from: www.dwp.gov.uk/docs/sayce-report.pdf

On the 6th March, the Minister accepted all the recommendations of the report, and agreed to channel all the money saved into ATW which will enable many more Disabled People to be employed in ‘proper’ jobs.

SCIL is saddened that those working in Remploy may end up out of work, but we do have to look at bigger picture. Keeping these people disempowered is just wasting their potential and wasting their lives; as well as perpetuating negative stereotypes about Disabled People. So, a real victory for Disabled People, however, there are many more institutions left that still disempower us. Which shall we tackle next?

Ian Loynes is Chief Executive of the Southampton Centre for Independent Living and a trustee of Disability Rights UK.

Thursday, 19 April 2012

It's finally arrived - Raceweek!

I'm Declan Bradley and I am running the London Marathon this Sunday, 22 April 2012, on behalf of Disability Rights UK.

There were times when I was dragging myself round some freezing park on a 10 mile run in the depths of winter, that I was thinking what an ordeal I had got myself into, but knowing what I was doing it for always spurred me along. I had helped out Disability Rights UK with pro bono legal advice through my law firm Taylor Wessing LLP, as we assisted with the setup of the charity. Clearly being its lawyer just wasn't enough for me and somehow I also ended up being its runner as well! I jumped at the chance really as it's an amazing charity and I can empathise with its aims, as my Gran was wheelchair bound as long as I knew her. Therefore, growing up, I could see first hand some of the issues facing disabled people trying to lead independent lives.

As I write this on the Wednesday before the race, I have just finished the last run of my training and I have been reflecting back over the past six months. It's involved a lot of sweat and pain but I have got there, I hope! I have probably ruined a few friendships as well along the way with my persistent emails, texts, calls to donate via my website page, which is at https://mydonate.bt.com/fundraisers/declansgoing2bknackered. I've discovered new bits of London on my runs and rediscovered the beauty of my native Ireland having been on a few runs on the Donegal coast when back home visiting family. I suppose all that is left to do now is to cross the finish line…….oh and to keep on raising that cash!

Declan

Monday, 16 April 2012

On the Touchline - A career in sport


I went to Tottenham Hotspur FC to watch a junior match for people who are partially sighted. My impressions and expectations of partially-sighted football were completely wrong. Spurs introduced me to a volunteering coaching project set up with Haringey Mencap called The Spurs Project: Sport for People Under Represented in Society. I was blown away by the positivity in and around the project and instantly became a volunteer. Along with being a coach I was also able to learn more about being a support worker within Haringey Mencap. I went on to work full time within the day centre as a support worker and eventually to become a service manager. I really enjoyed my time working on the project because it was able to teach me more about working with disabled people on a daily basis but also it taught me that I had certain skills that I was not aware of and that I was looking to develop. Through this work I really found myself and also regained my confidence as a person and a sportsman. I got the opportunity to gain a number of qualification, in football, community leadership and working with disabled people.

Now as Senior Inclusion Projects Officer I’m a full time member of staff in the Disability and Inclusion Department at the Tottenham Hotspur Foundation. To other disabled people who want to work in sport, I would say be open to volunteering because it can always lead to a positive. It can allow you to find out if you have an interest in a certain area of work and can provide valuable experiences. Being visually impaired hasn’t made me a better coach but it has made me more aware of people’s needs and I make sure that I am even more prepared and organised when delivering a sports session.

Sport is a fantastic motivator and is a vehicle to provide opportunities for people to develop. It can provide opportunities for individuals to learn, exercise, access qualifications, socialise and build on existing skills. The skills that I have developed through sport are completely transferable into everyday life and any working environment.



Thursday, 12 April 2012

The need for speed


I’m totally deaf and blind and have problems with balance – it’s like being permanently drunk (but not as much fun). I do everything through the sense of touch. My chosen favourite sports are quadbiking, jetskiing and tandem cycling. With the first two I normally sit on the front with a sighted pillion rider who uses a simple but effective system of touch signals to indicate the direction to steer and when to slow down. (I don’t need any encouragement to go faster!)

I used to motorcycle but when my balance started to go in the mid 90s, I bought my first quadbike which was fantastic fun. I was offered the use of a 100 acre field and the chance to get up some serious speed on the straights. It takes skill to do it safely without sight and a lot of practice to build up the speed and slow down on grass without skidding – you really have to trust your pillion rider and vice versa. It was exhilarating to reach speeds of up to 80mph in a matter of seconds riding a race-tuned 700cc quad. Other people’s attitudes can get in the way of disabled people doing sports. Chief among them is that it would be too dangerous. But where are the stats to back that up? Isn’t it true that thousands of sighted people crash their cars every year and yet still carry on driving afterwards? Shouldn’t disabled people be allowed to have accidents too without being made to feel somehow that it will be seen as a reason to stop their sport?
In 2004 with a serving police officer as pillion rider I smashed my previous quad world speed record reaching a top speed of 136mph and an average speed of 133mph.

Graham Hicks


Wednesday, 11 April 2012

Access to elected office


People living with disability or health conditions bring valuable experiences and insight to elected bodies, and assist better decision-making for all. That is why Disability Rights UK works towards increasing disabled people’s leadership and control. Through our leadership work and the MP Disability Dialogue we aim to empower disabled people to become involved in public and political life. E.g. to date we have supported 450 disabled people through leadership programmes and also co-ordinate a network of disabled people in more senior jobs – Radiate, run in conjunction with Lloyds Banking Group – which has over 200 members, some of whom mentor disabled people earlier in their careers.

We support the Government’s Access to Elected Office strategy. To achieve its objectives, it is vital that the Government fully involves disabled people and disabled-led organisations in the delivery of the strategy, and that the fund is administered in a way that is transparent and respects disabled people’s individual choices for support. We are pleased to publish an article by Lynne Featherstone MP, the Minister for Equalities.


Have you thought about standing for elected office?  Becoming an elected representative – for example a local councillor, an elected police and crime commissioner, a mayor or an MP – can be an exciting and often life-changing experience.  My own journey to political office started with me simply wanting to make a difference to my local community and to stand up for local people.

But starting on your route into elected office can be daunting, particularly if you feel you face particular barriers in taking part fully in your community.

As Minister for Equalities, it seems obvious to me our democratic institutions make the best decisions when they have a mix of people with different skills, backgrounds and experiences, from right across the country.

But at the moment there are many faces missing - disabled people are currently under-represented in public life. Less than 5% of public appointments are currently held by disabled people, despite around 20% of the population having some form of disability.

A strong democracy is an inclusive one.  We need everyone’s contribution. This is why Government is committed to providing  extra support to tackle the particular obstacles faced by disabled people who want to become MPs, councillors or other elected officials.

We ran a public consultation from February to May 2011, seeking your views on a range of policy proposals designed to provide additional support for disabled candidates running for elected office. You told us what was important to you – and we are now working with political, disability and other stakeholders to make these proposals happen.

These include setting up a dedicated fund to help individual candidates with disability­- related costs, new training and development opportunities, raising awareness, and working with political parties to share good practice on disability and explain legal obligations.

You told us that it was important to tackle the negative perceptions that people might have about disabled people in political parties and encourage the political parties to include disabled people fully. 

So we are launching new online guidance to support political parties make reasonable adjustments for disabled people [http://www.homeoffice.gov.uk/equalities/equality-public-political]. We have developed this with the help of political parties and Disability Rights UK.

You also told us that training and development opportunities were important to support disabled people achieve elected office.

I am pleased to announce that we have appointed BYG Systems Ltd to deliver an online training package aimed at disabled people wishing to access elected office. BYG will be working closely with disabled people and disabled people’s organisations in order to develop this training package and you will hear more about the training soon. 

These policies are just the start of what we are doing to make Parliament and councils more representative of the people they serve.  Who knows, you could be one of those whose contribution we are currently missing in our council chambers or even in Parliament itself.

Lynne Featherstone

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